It was TRIATHLON that brought me to this answer! During the Cohassett Tri, I met a woman during the run. We got to chatting and she also had migraines. We discussed the very similar symptoms, drugs, and the fact that no doctor could figure out what the heck was wrong with us. Randomly we also started talking about our hypermobility (aka my bar tricks). I never in a million years thought the fact that I can bend my fingers backwards past 90 degrees, or the fact that my arms flip around would be a MEDICAL problem. And that problem would cause my migraines. I never once thought to even tell my doctor about this!!!
Meeting this woman made me think "hm.. could they be related, we both have migraines and hypermobility." So I started to research, discussed with my doctor and he sent me to a Rheumatologist. Friday I was finally given an answer: Ehlers Danlos Syndrome - type 3 (hypermobility). **EDS is a Genetic Disorder of the connective tissues** Unfortunately this is a diagnosis that doesn't have a genetic test, it has just symptom testing. I will never be 100% sure, but no one with this type is. I do have all the signs though.
The more I read about it, the more I have "AH HA" moments. So many things are making more sense to me. My back and hips always hurt; the bones always "fall out of place" (this is what causes my migraines). Occasionally my hip will literally dislocate and I have to put it back. As a kid I used to use the screen door to do put the hip back. Also on occasion the bones in my feet slip out of place and I have a really difficult time putting those back. This just makes me have to sit down for a while and massage my feet. I just thought I was "super-flexible."
I suspect I will write a lot more about this as I continue on my journey. I now have a reason for my pain other than "I'm a wimp" or "I'm out of shape" - I don't plan on using it as an excuse, but its nice to know that I'm not insane, or a hypochondriac- just a little odd :).
***updated 2/21: This post gets a ton of search hits from Ehlers Danlos + Migraine people. Please see this post as well for additional info, I wrote more info about me and my plight!
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